Hereditary Colon Cancer Community of Greater Michigan - open to anyone, anywhere with a hereditary colon cancer syndrome
One Cancer Place - Must register first in order to join any of the Facebook Places groups including for FAP
Colontown - Must register first in order to join any of the Facebook neighborhood groups including for FAP
Familial Adenomatous Polyposis (FAP)
This is my life with Familial Adenomatous Polyposis and Short Bowel Syndrome.
I was diagnosed with FAP as a child, underwent total colectomy at age 9. I experienced life threatening complications resulting in 4 more surgeries that year and developing medical PTSD. I had an ileostomy for 6 years before having it reversed into a straight pull-thru that also resulted in life threatening complications requiring an additional surgery the following year. In 2021, I required my 8th surgery to remove my gall bladder due to gall stones and FAP. This surgery exacerbated my, at the time undiagnosed, Abdominal Migraine which is now being treated.
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